Just a quick note to say Steve is doing very well, he's very tired and feeling a bit sick and spent most of today in bed but apart from that he's been very chipper. As usual found the strength for a few glasses of champagne last night and was able to eat too.
Annoyingly his IVIG antibody treatment, which he was due to have over the weekend, has been cancelled. Apparently you have to have it for 6 months in hospital before you can have it at home. So the last time Steve had it at home no one was covered for insurance and we'd have been in trouble if something had gone wrong. So, poor Steve, who was really pleased that his hospital days were over, will be back in hospital for 3 days next week to have his treatment. Really frustrating, but at least he will be able to come home for the nights in between. The hospital here is great and all the nurses are lovely but I think Steve has had enough!
Children doing very well, both sleeping 12 hours a night (thank you!!) and so Mummy is slowly feeling human again too!!
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