The plan

Hello all,

Steve is recovering from chemo, good days and bad days......It usually takes a good ten days so we are hoping that by the weekend he'll be feeling better.

They decided to stop his IVIG treatment for now. They want to see how he recovers from the chemo and how the treatment of the cancer will help his autonomic problems so they will wait till after his radiotherapy and then we'll be back to the neurologist in a few months to see if he has improved and what further treatment is required.

Steve is pretty happy to have a break from hospitals and being poked and prodded. He has a scan on the 3rd Feb to check the cancer is gone and then a few weeks of radiotherapy concentrated on the area of the tumour. So a few more weeks of waiting and then hopefully we can relax a little. He's looking forward to the spring, he really feels the cold at the moment. Then we can get him into the greenhouse that Justin and Jake have been working so hard on building for him and i'm sure he'll start feeling better. I never thought my husband would turn into Alan Titchmarsh but there you go! There are worse things in life i guess!!!

Resting up

Just a quick note to say Steve is doing very well, he's very tired and feeling a bit sick and spent most of today in bed but apart from that he's been very chipper. As usual found the strength for a few glasses of champagne last night and was able to eat too.

Annoyingly his IVIG antibody treatment, which he was due to have over the weekend, has been cancelled. Apparently you have to have it for 6 months in hospital before you can have it at home. So the last time Steve had it at home no one was covered for insurance and we'd have been in trouble if something had gone wrong. So, poor Steve, who was really pleased that his hospital days were over, will be back in hospital for 3 days next week to have his treatment. Really frustrating, but at least he will be able to come home for the nights in between. The hospital here is great and all the nurses are lovely but I think Steve has had enough!

Children doing very well, both sleeping 12 hours a night (thank you!!) and so Mummy is slowly feeling human again too!!

Roll on the 6th January....

....Steve's last chemotherapy session! We will all be pleased when this stage is over. Its been gruelling to say the least but we are very thankful it was only 3 cycles and not 8.

We all had a good christmas, especially after last year. I think we were all amazed to see Steve up on Christmas day, even finding the strength to force down a glass of champagne! But considering he only had chemo on the 23rd and then endured the 2 and a half hour journey down to my parents house we were all impressed. It was a lovely break away from it all for all of us.

So next chemo on the 6th and then radiotherapy for 10 days. Hopefully that will be the last of it and we can concentrate on getting Steve better and putting some weight on.

A happy and healthy new year to you all x x x x x