Steve saw his team of doctors today and the good news is that the bone biopsy has come back clear - so no cancer in the bone marrow - phew! Just got to hold on now till the scan next week to look at the spine but one worry out of the way.
He is doing very well, had his chemo today and his first infusion of his antibody treatment. The second should be tomorrow and he should be home tomorrow evening - just in time for X Factor (he can hardly contain his excitement). The doctors are now going down the auto immune route - to see if this has caused his autonomic problems. For those of you who don't know autonomic refers to a nervous system which controls your unconscious body functions such as breathing or blood pressure. It is why Steve has so many problems regulating his blood pressure and so much pain in his stomach (amongst other things). As he already suffers from an auto immune disorder - ankylosing spondylitis - this could be a possibility. Yes it is all very confusing and no we don't really understand it, to be honest neither do the doctors really but they are trying their very hardest to get to the bottom of it all and looking at all options. Anyway suffice to say that the antibody treatment is related to auto immune disorders and could help. Right, thats the science bit, time for another glass of wine!
So we are all doing ok. Steve is in good spirits and looking forward to coming home tomorrow. The little scraps are being very well behaved for the grandparents and Arabella even gave them a lie in till 9am this morning so all quiet on the home front.
I'm sure Steve will be on to update you all tomorrow, I'm off to bed whilst Grandma does the late night feed to Xavi. I think i'll take my glass of wine with me.... night night!
So why a blog?
The simple idea behind this blog is to help us keep family and friends informed of whats been happening. As you all know, this year has been a little of a roller coaster ride for Anna & I and it's not always easy to find the time to update everybody with the latest news, we don't want this to be 'facebook' update of pointless drivel but somewhere where people can check to see how we are doing if they want to. Please don't feel obliged to visit or post, just come and have a look if you want to, take care and love to you all!
That is good news and, as you say, one worry out of the way. And thanks for the science lesson (I had no idea what autonomic was) . . .
ReplyDeleteReally glad the news was more positive this time and that I have finally seen that back disorder written down....I would have guessed it as 'angleo-spondilitis'!!!
ReplyDeleteSteve - hope you are enjoying being back home and that you all not only enjoyed X Factor but the Take That documentary afterwards...
I bet when you and Paul were younger and busy discussing BMXs and your evil sisters, you never thought that in later life you would be able to discuss such highly advanced medical conditions and operating procedures! xxx
Good news. Long may it continue. Hope the lie-ins continue and that Steve is getting some rest. I'm looking forward to some peace at work tomorrow - have had a firemans siren going most of the weekend - thanks! I thought you said you had chosen quiet presents this year...!Perhaps I'll give you the benefit of the doubt that you didn't realise the kit included batteries. xx
ReplyDeleteoops! Sorry Rosie, thought i'd been good this year. But very pleased my lovely godson enjoyed his pressie! x x x x x
ReplyDelete