Yes, i know, no updates for ages, we are rubbish. Its been a very hectic couple of weeks, somewhat stressful and Steve hasn't been great. Its difficult sometimes to sit down and write an upbeat message when you aren't feeling so upbeat! But things are ok, Steve is doing well, the chemo is exhausting him and he's been in bed most of the time. The last couple of days have been so much better and he's been up and about and spending some nice time with the children. Its a shame really to know that after his chemo today the cycle will repeat esp when you see him go off to the hospital in the morning all chirpy and come back so ill.
Slight difference in the UK treatment and the French! Steve was picked up by private ambulance this morning, on time, free of charge, and taken to the day unit where he had his own room with en suite for the day. He was home prompt by 4.15pm! It does make things easier for us when the hospital is so efficient and also full of so many kind nurses and doctors. Tomorrow he starts his second course of IVIG treatment - introduction of antibodies into his system to help treat his neurological problems. This will be done at home over the next three days by an IV and yours truly responsible for changing the bottles of drugs over - something that fills Steve with fear! Not sure why, its not like my nickname at school was Calamity Jane or anything. Steve says i have a short attention span, cheeky sod, lets hope I prove him wrong!
I promise to be better at updates over the next few days and will maybe even bore you all with photos of our fabulous children, Bella has taken to bringing Steve her dummies when she sees he is poorly. So sweet but also a little sad. She is in bed now singing a song about chocolate by the sounds of it so obviously it is not affecting her too badly. Hopefully we are on the up now and she will have forgotten about it all in a few months time.
Bisous a tous x x x x x xx
